Thursday, November 8, 2018

Dealing with Seizure & Vocal Tic Disorder


Everyone who knows me has known about my struggle with Leukodystrophy and Seizures. But for the past three months, I have been dealing with vocal tics. Having both Vocal Tic Disorder plus Seizures have been a challenge for me to deal with. Sometime I will have tic attacks leading into a seizure, which can take a major toll on my body.  




When People Stare

  People have always looked and stared at me because of my seizure helmet, but now when I have my vocal tics even more people look and think there is something wrong with me. Some of them walk away like they are scared to be around me. 

Loud

  Sometimes my vocal tics can be really loud. At times they can be small and quiet as well. I wish I could keep them under control. I have had a total tic meltdown in the middle of Wal-Mart at one time.

Sleepy

After having tics all day most of the time it will leave me feeling tired and sleepy. Sometimes I will have high blood pressure after a major tic attack. The last time this happened I was forced to take five days off from work. 





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