Wetting Myself

There many things that I  lose cotrol of during a seizure. One thing that happens to me a lot is I end up wetting myself, I do of course wear adult diapers to aviod embarrassment. I have had so many problems with seizures that I have become regularly incontinent, that means I wet myself even without having a seizure.

With my incontinence it hase become rather expensive. I use about 2 cases of 80 diapers a month. That is not includig wipes creams and pouders. The only time I save mony is when I find diapers at thrift stores.


Wearing in public can sometimes be a  problem. Carrying an extra bag for my diapers, or wearing a diaper in the airport. Most of the time it is hard to hide the fact that I am wearing, or wet. Changing a wet diaper is a big hassle in a public restroom. Most of the time I have to use the large handcap stall to have enough room to change.

It is really hard to tell the hospital that I wear a diaper. They see these types of things all the time, but it is still hard for me to tell them that I need a change, or that I'm wet. 

I do have a lot of challenges being incontinent on a daily basis. I just wanted to write and share my own personal experience

Epilepsy & Wearing Diapers

One question that a lot of people ask. Is it normal for adults with epilepsy to wear diapers. The answer is that it is a matter of preference if the person with epileptic incontinance feels it is necessary for them to wear an adult diaper. Some people are OK with wearing them, while others are turned off by the idea.
     When I started having problems with incontinence it was a very hard transition because in my mind I thaught only babies and old people wear them. One day I had an acident after having a seizure in public, I wet myself and it was an embaressing moment in my life. All I knew is that I never wanted that to ever happen again. In my opinion, it is better to wear an adult diaper then it is to have an embaressing acident in public.

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My Bucket List

One thing that I have been thinking about as my life goes on is things I want to do bwfore I get to old, or before my condition gets to bad. I have been making a list of things goals in lfe that I want to accomplish in my life as well as places that I would like to go. Life is to short and we should do everythingf we can to live our dreams no matter how old or how old we are, and no matter what obstacles are put in our way. 

I have my own list that I want to share, I will be working as hard as I can to check some of these of soon.

• 1 Go to Wrestlemania
• 2 Visit another country
• 3 Make a film about Epilepsy
• 4 Earn a YouTube Silver and Gold Play Button
• 5 Take my family on cool vacations
• 6 Help young people, who strugle with depression, and substance abuse.
• 7 Go to VidCon
• 8 Have a meet up to meet some of my subscribers.
• 9 Visit NYC and see the 9/11 memorial

   There are probably a bunch of other things I can add to my list that I haven't thaught of yet. My piont is this, do as munch as you can while your here, because if you sit around, life might just pass you bye.

Hard Shell Seizure Helmet

For a bigger part of mylife I've had to wear a seizure helmet. Since 2009 I have baught about five different helmets including the most recent one that I have now. Most of the ones before were foam rubber or leather. The most recent one is a hard shell helmet with a foam rubber liner on the inside with hard shell ear covers. 

The reason for the hard shell up grade was because aboutt a month a go I was shopping a Wal-Mart when all of the sudden I passed out on the floor. The next thing I knew was that I was waking up with a manager telling me that I had a seizure. He told me that I had fallen pretty hard, and man did I feel it the next couple of days.

  The next couple of weeks I was to scared to go anywhere by myself . This is when I decided to try and upgrade to a hard shell helmet. My reasoning was that this would be more durable, and it would make me feel more safe.

  I will begin to tell you that seizure helmets are not cheap. This particular helmet cost me about $470 thats including the shipping cost. Being someone who works in fast food, this was not easy to come up with the money. 

  On the news I saw  stories of how some people were able to get help using croudfunding services.
One particularly was GoFundMe, so thats what I did I set up a page and in about a month I was able to get my helmet.

  I am so thankful that a lot of my friends and family could help me raise the money for my helmet. Now my brain feels a lot safer because of it.

Need For A Hard Shell Seizure Helmet

    Most of you who come here and read my blog  know that I have seizures. The cost of me trying to keep myself healthy and safe can be rather expensive. Well just last week I passed out at Walmart and had a seizure I woke up later and the manager was standing over me and told me not to move and that I had a seizure. Thank God I had my foam rubber helmet on. I did however drift in and out of consciousness. The next day I had extreme headaches. 

   Now that I'm 40 I find that I have a need to be safer and protect myself fom injury. I have been wanting for some time to have a hard shell helmet, I believe that it is much more durable and will protect my head better than a foam rubber helmmet. I have beenn looking and pricing them out and the one I need with all the options I want the cost is around $470.00 and that includes shipping. I am in desperate need to be safe, I have set up a GoFundMe page for anyone who would like to help me. If I can I will try to keep everyone updated on how much money I have raised.

Adult Diapering (Comfort vs Value)

My monthly diaper stash

When it comes to adult diapers everyone is looking for something different. For some people it's comfort that is the most important and for others it's price and value, it's almost impossible to get both.
No matter what your looking for adult diapers are expensive even if you save a buck or two. There are other factors to concider, how many diapers do you use per day. For me I go thru about 6-8 diapers a day. At first comfort used to be imortant to me but now that I've been in diapers for some time now value and price have been more important. I get my diapers from multipal sources solme from Ebay, Some from discount diaper sites, but the best deals I've found is from Goodwill Stores on 50% off days. Now when I go to Goodwill a pack of diapers is $6.00 but on 50% off  day you get them for $3.00 a pack. Each pack has 18 diapers  that means if you buy 4 packs you just baught a case of 72 diapers for $12.00 and normaly a case of 72 costs about $56.95 online. Now I will confess that if I have extra money I will pay for comfort, my diaper of choice for comfort is Tena Ultra I pay $68.00 for a case of 80 diapers and I buy two cases normaly. So now you can see there is a big differance between confort and value but whatever way you want it it's still expensive.

(Electric Magnetic Feilds) EMF Sensitivity on the Brain

(Eletctric Magnetic Feilds) EMF is everywhere from cell towers to cell phones, even your computer and wireless routers, basically anything powered by a large amount of electricity. High EMF can have a huge and dangerous impact on the brain especially someone like myself, simply because I have epilepsy. I have really noticed EMF sensitivity at my workplace because there is a lot of computer monitors and electrical equipment for preparing the food.

This is especially bothersome with my VNS (vangus nerve stimulator) when I go to work it feels like I'm constantly using the VNS magnet over and over again. I will say that high EMF sensitivity has never been a factor or problem for me until I had the VNS implant. Even for people without epilepsy  EMF sensitivity can cause a variety of other problems, Headaches, Migraines, Irritability, behavior disorders, Insomnia, ADHD, Alzheimers Parkinson's Stroke, Seizures, Nerve and/or muscle pain Fibromyalgia, Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME),  Multiple Sclerosis, Tumors, cancer, Heart attacks, and cardiac arrhythmias.

Having A Seizure In Public

Having  seizures in a public place can be embarassing  as I have found out just a few days ago. I was shopping with my wife when all of the sudden I had a small seizure in the checkout line at a thrift store. I am so glad that I was not alone that day simply because there is not a lot of people who know what to do in these situations. To all those who have epilepsy, I would say that if you have severe seizure activity, don't go anywhere alone. I myself already stay home alone everyday and still I don't feel safe. So I know not to go anywhere alone.

Electric Brain Shock

Well it's been about three months now since my VNS surgery. I have had three  adjustments to my implant for the stimulation. With each time I go the electric stimulation seems more and more intense. I am really hoping that they get the dose to where it needs to be soon. I was just in the ER for seizures this last weekend and today I had to go back for another adjustment. This time the stimulation was so strong it literally floored me. Later on I had to use the magnet to stop a seizure and it felt like my brain was being completely electrocuted and cooked inside my head.  I almost wanted to cry it was that bad. I have felt tired and dizzy all day. Now the maximum level of stimulation is about 5 and I'm not even there yet. I'm only at about 2.5 and it's almost unbearable now. Now because the seizure activity I am wearing the helmet again.

Living Day to Day with Epilepsy

Living with epilepsy has been quite a challenge for me simply because every day is never the same. I never know if I'm gonna have a good day or a bad day, or if I'm gonna have 1 seizure or 20 seizures in a day. I have days when I feel great and other days when I feel crappy, every day is different. 

  There are several things I deal with on a daily basis. I have a VNS implant that sends an electrical current to my brain every five minutes. My sleeping patterns are all messed up so sometimes I get up on time or sometimes I sleep all day. A lot of times I have seizures during sleep, so when I get up in the morning I feel dizzy and disoriented. Because I have had so much seizure activity for so many years, my nerves are all messed up and I have urinary incontinence. Every day I have to wear adult diapers, I have to change them about  once every 
2-3 hours a day.

    I really enjoy the good days. On good days I clean house, do a little reading from my Bible, and take a long walk with my dog.
   
Epilepsy is a struggle, but I just try to take everything one day at a time.

      

Even if you have epilepsy.

I have had epilepsy all my life, ever since birth, and ever since then even though I have struggled, I have never let anyone tell me that I can't do what my heart desires. That is the topic of this article, that even if you have epilepsy you can still do it. There are many things I have accomplished in my life that I would like to share with you. I am 37 years old, I am a husband, and a father. I am well respected by my family, friends and others who know me. Things I am very good at are writing, blogging, and short film making on YouTube. I also have Pastors certificate and License to Preach after taking an online course a few years ago.

  Well I'm not trying to gloat about myself, just trying to show that just because you have a disability it doesn't mean you can't do anything with your life. Plus I know that there are other, that think epileptics are helpless, wich is far from the truth. I had a friend in High School who had seizures really bad, she was in a wheel chair, and even though she had the option to stay home because she was so bad, she came to School every day and even graduated with honors. Unfortunately about a year or two later she passed away, but she never let her condition control her life. 

   Just to end this article I just want to say that I hope this has encouraged those who have epilepsy, and I also hope this has opened the eyes of those who may think that epileptics, and others with disabilities are helpless because we are not. It may take us more time to accomplish tasks, but overall we can still do it.