Adult Diapering (Comfort vs Value)

My monthly diaper stash

When it comes to adult diapers everyone is looking for something different. For some people it's comfort that is the most important and for others it's price and value, it's almost impossible to get both.
No matter what your looking for adult diapers are expensive even if you save a buck or two. There are other factors to concider, how many diapers do you use per day. For me I go thru about 6-8 diapers a day. At first comfort used to be imortant to me but now that I've been in diapers for some time now value and price have been more important. I get my diapers from multipal sources solme from Ebay, Some from discount diaper sites, but the best deals I've found is from Goodwill Stores on 50% off days. Now when I go to Goodwill a pack of diapers is $6.00 but on 50% off  day you get them for $3.00 a pack. Each pack has 18 diapers  that means if you buy 4 packs you just baught a case of 72 diapers for $12.00 and normaly a case of 72 costs about $56.95 online. Now I will confess that if I have extra money I will pay for comfort, my diaper of choice for comfort is Tena Ultra I pay $68.00 for a case of 80 diapers and I buy two cases normaly. So now you can see there is a big differance between confort and value but whatever way you want it it's still expensive.

Exorcise and Epilepsy

Some people with epilepsy avoid exercise because they are afraid they will have a seizure during the activity. In fact, it is extremely rare for a person to have a seizure while exercising. Rather than triggering seizures, their epilepsy may improve with exercise. Although the reasons are unclear, studies demonstrate that abnormalities on EEG (a test that measures electrical activity of the brain) decrease during exercise. Overall fitness and a feeling of well being have been shown to help reduce seizure frequency. People feel better and may improve their seizure control with regular exercise. One report suggests that exercise improves self-esteem and social integration, regardless of seizure control. It has also been shown that regular exercise reduces the number of overall health complaints, such as muscle pains, sleep problems, depression and fatigue. Most sports activities are acceptable as long as people avoid overexertion, dehydration and hypoglycaemia (low blood sugar). If seizures occur, it is most likely after the exercise (15 minutes to three hours after exercise).

Using A Rollator Walker

Recently because of dizzy spells and  blackouts I have to use a Rollator Walker. I mostly use it when I go shopping, Church, and when I go for a walk. I love the fact that it has a seat, I can sit down on the seat and rest, that is why I asked for it. Because of my lightheadedness and dizzy spells I can't walk for far distances. Like I have said Leukodistrophy has started to take it's toll on my body. I have seen others with my disease in wheelchairs but that is something I want to aviod. I still want to be able to walk as long as possible.

Difficult things for me to deal with having a walker are getting in the refreshment line after Church. Also at my age of only 37 alot of people stare at me when I go to the store.
As things start to progress even though I get the looks and stares I'm still greatful that I can still get around even if it is with my walker.

      

Progression of My Leukodystrophy

Since the day of my surgery I have seen things get better for a while, then get worse. A kind of back and forth kind of progression. I have Leukodystrophy, and it's kind of a progessive disease that gets worse with age. Leukodystrophy is a diterieration of the Myelin Sheath or (white matter) in the brain. Myelin is the protective coat over the nerves in the brain, kind of like the plastic protection on an electrical cord. 

People with this disorder experience

• Balance / equilibriun problems
• Shaking (ataxia)
• Seizures
• Problems with motor abilities (walking running)
• Probems with itellectual abilities (comprehension, memory, behavior)
• Sensory problems (seeing hearing etc.)

With my VNS (Vagus Nerve Stimulator) I don't believe that this is a cure for my Leukodystrophy.

I have read from other people that they have had there loved ones have VNS to help control the seizures.

This does not stop the fact that the Myelin Sheath (white matter) in the brain is still in deterieration. So it is not my opinion that VNS will stop or control any of the other simptoms listed above. The reason for this is because I have begone to experience some of the other simptoms of this disease and it will only get worse as I get older.