Feeling Burned Out

Almost every day I am feeling tired worn out and burned out. Sometimes I feel like I might start having seizures or have a relapse. I have been trying to get somewhere back to a normal state. Maybe I have been pushing myself to hard, I'm not really sure. Between working, meds, and VNS stimulation, I find myself out of order. One thing I do know is that it's taken me this long to get this far, so there is no turning back. I just have to keep moving forward, and I will eventualy get there. If things don't work out at least I tryed.

Exorcise and Epilepsy

Some people with epilepsy avoid exercise because they are afraid they will have a seizure during the activity. In fact, it is extremely rare for a person to have a seizure while exercising. Rather than triggering seizures, their epilepsy may improve with exercise. Although the reasons are unclear, studies demonstrate that abnormalities on EEG (a test that measures electrical activity of the brain) decrease during exercise. Overall fitness and a feeling of well being have been shown to help reduce seizure frequency. People feel better and may improve their seizure control with regular exercise. One report suggests that exercise improves self-esteem and social integration, regardless of seizure control. It has also been shown that regular exercise reduces the number of overall health complaints, such as muscle pains, sleep problems, depression and fatigue. Most sports activities are acceptable as long as people avoid overexertion, dehydration and hypoglycaemia (low blood sugar). If seizures occur, it is most likely after the exercise (15 minutes to three hours after exercise).

Part Time Work and Epilepsy

One thing I have been worried about these last few months since my VNS surgery is going back to work part time. Before the implantation of my VNS I was having lots of seizures, even afterwards I was still having seizures at a regular pace while my  VNS was being ajusted. Finaly I have come to a point to where I haven't had any seizures in a while. Finaly aafter all the waitihg at home I decided to go bact to my old work place and see if I could have my old job back, and fortunantly for me I will be going back to work soon. 

  There is one thing however I am concerned about and that is how my body will react to me working again since I have not been working since July of 2012. I have notice at home after working around the house I get burned out after about 4-5 hours. I think it is do to the medication and the high amount of electrical stimulation from the VNS. I guess I will have to take it slow for the first few weeks.

Aquariums to Help Reduce Seizures

Today I want to share with you one thing that I have done to help reduce the amount of seizures I have. All my life I have loved fish, simply because I used to work at a pet store when I was 18 years old. One thing I have found is that watching the fish in the aquarium helps to calm the nerves from stress. This year since I was having problems with my seizures, I decided to buy a small three gallon tank. I have had the aquarium now for three weeks now and haven,t had one single episode with my epileptic seizures. Now I will say that not all fish help with calming effects of seizures, one example are fish that glow from the effects of black lights, these can put an epileptic into a trance causing a seizure. I recommend either gold fish or tropical fish that have normal lighting in the tank. I will also  say that having fish is a good way to also reduce stress which is a cause of seizures.

I hope this article was helpful.

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Organization and Sanitation Products for Incontinence

One thing that I have started doing with my incontinence products is finding a way to keep everything nice and organized. I dicided to go to Wal-Mart to try and find something for this, because all my adult diapers and other things were just stacked on my dresser. 

    I baught two Sterilite 3 drawer Carts to organize my things. I have a place for everything now. Since I have two I took the weels off of one cart and stacked them together to make it a 6 drawer cart. So in one draer I keep me disposable underpads, then the booster pads, disposable underwear, the next few drawers dispoable briefs, and at the top, gloves, wipes, and cream to protect against rash.

 One other thing I dicided to purchace  is two small trash cans with lids, to keep areas sanitary and free off jerms and bacteria.

Using A Rollator Walker

Recently because of dizzy spells and  blackouts I have to use a Rollator Walker. I mostly use it when I go shopping, Church, and when I go for a walk. I love the fact that it has a seat, I can sit down on the seat and rest, that is why I asked for it. Because of my lightheadedness and dizzy spells I can't walk for far distances. Like I have said Leukodistrophy has started to take it's toll on my body. I have seen others with my disease in wheelchairs but that is something I want to aviod. I still want to be able to walk as long as possible.

Difficult things for me to deal with having a walker are getting in the refreshment line after Church. Also at my age of only 37 alot of people stare at me when I go to the store.
As things start to progress even though I get the looks and stares I'm still greatful that I can still get around even if it is with my walker.

      

Shirts, Buttons, Mugs and More

My mission here is to continue to bring you more great content. I enjoy bringing you an insite into my life with Leukodystrophy. I have alot of readers as well as a lot of listeners on YouTube. I would like to continue this but I'm having to raise some funds to keep my internet bill paid. So I am selling some uniqu items on Cafe Press to help fund my outreach. I am selling T-Shirts, Mugs, Buttons, and other cool things. As you can see that all my items have a Christian theme to them, that is because I'm not just a person with epilepsy, I'm also a firm believer in the Lord Jesus Christ. So the proceeds from the sales will go twards keeping me online and also giving out of free Bibles if you would like a Bible please e-mail me brotherjohnspeaks@gmail.com Some of you may think that I may make a killing on all these items I sell but the truth is that I only make about $2.00 on each item after Cafe Press gives me my comission. I have to earn $25.00 before they will release funds to my PayPal account. I have picked out items to sell in my store that are for any buget so feel free to browse around and find an item that is right for you. Click Here to Shop