Digestive Probems

Today I want to talk about a problem that most people who take seizure meds have, and that is digestive problems. Some times we puke them up, or they end up in the tiolet after we use the bathroom. The one question I asked is should I retake my medication since it had not fully digested. The Answer by a Dr. Young on a health site was this:  In general in you throw up more than 15-20 minutes after taking your meds, there's no need to redose. Further to this point, unless you actually see pills in the vomit, I wouldn't suggest redosing, because there's a good chance the medication has been absorbed already. To see my source go HERE

Product Review: Attends Breathable Briefs

There is a new product that I tried and here is the review. I this is a great diaper for those with heavy incotenance. This adult brief is great because it does not feal like other briefs that cause you to swet a chafe between the legs. This brief is breathable because it is made of soft material instead of unconfortable pastic.

Features include.

Contains additional super absorbent polymer and cellulose fibers for maximum absorbency

Triple-tier moisture locking system delivers superior performance and leakage protection while promoting skin wellness and managing odor

I love this product because it is super obsorbant 

and it helps you last through the night and helps 

you stay dry all night long.

I highly recomend this product to anyone needing 

incontent products.

This is a great value for a great product.

Leukodystrophy: waiting for death.

As the white matter slowly deteriorates from the brain, things can be quite unbearable  for those waiting to die. Death for people with Leukodystophy can be anywhere between 5-20 or even 30 years depending on the age of the person when diagnosed. My personal experience with this disease has been a hard road to survive. Even though I am still able to work a part time job I still struggle to make it through the day. When I first started having problems I could push myself through the day with the help of medication to control the epileptic part of this disease. In July of 2012 I had a procedure doe to better improve my quality of life VNS (Vagus Nerve Stimulation).

 This is like a pacemaker for the brain that sends electrical stimulation to help control seizures. Even though my seizures have been dramatically reduced this still does not stop the progression of this disease. Now that I am almost 40 I find that I have days that I can't move, talk, walk or even see clearly. Another thing I have started to deal with is strange mood swings and behaviors. Some if not all of these things are a part of the  progression of Leukodystrophy. One thing I know is that I cherish the good days I have but also know that things could go bad in a matter of seconds where I will lose total control of my body and have to have a care taker to help me along while I painfully wait to die. Anything can happen but I try to get around the hurtles put in front of me even though tomorrow could be my last day.

(Electric Magnetic Feilds) EMF Sensitivity on the Brain

(Eletctric Magnetic Feilds) EMF is everywhere from cell towers to cell phones, even your computer and wireless routers, basically anything powered by a large amount of electricity. High EMF can have a huge and dangerous impact on the brain especially someone like myself, simply because I have epilepsy. I have really noticed EMF sensitivity at my workplace because there is a lot of computer monitors and electrical equipment for preparing the food.

This is especially bothersome with my VNS (vangus nerve stimulator) when I go to work it feels like I'm constantly using the VNS magnet over and over again. I will say that high EMF sensitivity has never been a factor or problem for me until I had the VNS implant. Even for people without epilepsy  EMF sensitivity can cause a variety of other problems, Headaches, Migraines, Irritability, behavior disorders, Insomnia, ADHD, Alzheimers Parkinson's Stroke, Seizures, Nerve and/or muscle pain Fibromyalgia, Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME),  Multiple Sclerosis, Tumors, cancer, Heart attacks, and cardiac arrhythmias.

Feeling Burned Out

Almost every day I am feeling tired worn out and burned out. Sometimes I feel like I might start having seizures or have a relapse. I have been trying to get somewhere back to a normal state. Maybe I have been pushing myself to hard, I'm not really sure. Between working, meds, and VNS stimulation, I find myself out of order. One thing I do know is that it's taken me this long to get this far, so there is no turning back. I just have to keep moving forward, and I will eventualy get there. If things don't work out at least I tryed.

Exorcise and Epilepsy

Some people with epilepsy avoid exercise because they are afraid they will have a seizure during the activity. In fact, it is extremely rare for a person to have a seizure while exercising. Rather than triggering seizures, their epilepsy may improve with exercise. Although the reasons are unclear, studies demonstrate that abnormalities on EEG (a test that measures electrical activity of the brain) decrease during exercise. Overall fitness and a feeling of well being have been shown to help reduce seizure frequency. People feel better and may improve their seizure control with regular exercise. One report suggests that exercise improves self-esteem and social integration, regardless of seizure control. It has also been shown that regular exercise reduces the number of overall health complaints, such as muscle pains, sleep problems, depression and fatigue. Most sports activities are acceptable as long as people avoid overexertion, dehydration and hypoglycaemia (low blood sugar). If seizures occur, it is most likely after the exercise (15 minutes to three hours after exercise).

Part Time Work and Epilepsy

One thing I have been worried about these last few months since my VNS surgery is going back to work part time. Before the implantation of my VNS I was having lots of seizures, even afterwards I was still having seizures at a regular pace while my  VNS was being ajusted. Finaly I have come to a point to where I haven't had any seizures in a while. Finaly aafter all the waitihg at home I decided to go bact to my old work place and see if I could have my old job back, and fortunantly for me I will be going back to work soon. 

  There is one thing however I am concerned about and that is how my body will react to me working again since I have not been working since July of 2012. I have notice at home after working around the house I get burned out after about 4-5 hours. I think it is do to the medication and the high amount of electrical stimulation from the VNS. I guess I will have to take it slow for the first few weeks.