Most of you who come here and read my blog know that I have seizures. The cost of me trying to keep myself healthy and safe can be rather expensive. Well just last week I passed out at Walmart and had a seizure I woke up later and the manager was standing over me and told me not to move and that I had a seizure. Thank God I had my foam rubber helmet on. I did however drift in and out of consciousness. The next day I had extreme headaches.
Now that I'm 40 I find that I have a need to be safer and protect myself fom injury. I have been wanting for some time to have a hard shell helmet, I believe that it is much more durable and will protect my head better than a foam rubber helmmet. I have beenn looking and pricing them out and the one I need with all the options I want the cost is around $470.00 and that includes shipping. I am in desperate need to be safe, I have set up a GoFundMe page for anyone who would like to help me. If I can I will try to keep everyone updated on how much money I have raised.
Recently because of dizzy spells and blackouts I have to use a Rollator Walker. I mostly use it when I go shopping, Church, and when I go for a walk. I love the fact that it has a seat, I can sit down on the seat and rest, that is why I asked for it. Because of my lightheadedness and dizzy spells I can't walk for far distances. Like I have said Leukodistrophy has started to take it's toll on my body. I have seen others with my disease in wheelchairs but that is something I want to aviod. I still want to be able to walk as long as possible.
Difficult things for me to deal with having a walker are getting in the refreshment line after Church. Also at my age of only 37 alot of people stare at me when I go to the store.
As things start to progress even though I get the looks and stares I'm still greatful that I can still get around even if it is with my walker.
