Wetting Myself

There many things that I  lose cotrol of during a seizure. One thing that happens to me a lot is I end up wetting myself, I do of course wear adult diapers to aviod embarrassment. I have had so many problems with seizures that I have become regularly incontinent, that means I wet myself even without having a seizure.

With my incontinence it hase become rather expensive. I use about 2 cases of 80 diapers a month. That is not includig wipes creams and pouders. The only time I save mony is when I find diapers at thrift stores.


Wearing in public can sometimes be a  problem. Carrying an extra bag for my diapers, or wearing a diaper in the airport. Most of the time it is hard to hide the fact that I am wearing, or wet. Changing a wet diaper is a big hassle in a public restroom. Most of the time I have to use the large handcap stall to have enough room to change.

It is really hard to tell the hospital that I wear a diaper. They see these types of things all the time, but it is still hard for me to tell them that I need a change, or that I'm wet. 

I do have a lot of challenges being incontinent on a daily basis. I just wanted to write and share my own personal experience

Why Some Epileptics (ABDL) Age Play

   Some people don't why some of us like to age play. For a lot of people it's never for the same reason. Some ABDL's do it for stress relief, or some just miss that sense of reliving there childhood.
   

There is another group of people I want to talk about to today, something I don't think people know exists. People like myself, a person with epilepsy. Someone reading this may say this is ridiculous, but it's not a crazy as you may think.
I have many reasons that I age play, one of these reasons is my struggles with urinary incontinence.
Because of this I have to wear adult diapers, but this is not something to easily accept. To help myself accept this I have started to age play with baby toys, adult baby clothing, and ABDL clothing. With this new change in my life I have been a calmer person, have had less seizures, and I have felt more confident in my need for adult diapers.
    There are sopme people who may be angry or upset with this article. Some who my say, I have epilepsy and I don't wear diapers and act like a baby. To those people I would like to say, all of us who deal with this are different. Also we all have different things going on with our health and how we choose to deal with our problems is different as well.

Hard Shell Seizure Helmet

For a bigger part of mylife I've had to wear a seizure helmet. Since 2009 I have baught about five different helmets including the most recent one that I have now. Most of the ones before were foam rubber or leather. The most recent one is a hard shell helmet with a foam rubber liner on the inside with hard shell ear covers. 

The reason for the hard shell up grade was because aboutt a month a go I was shopping a Wal-Mart when all of the sudden I passed out on the floor. The next thing I knew was that I was waking up with a manager telling me that I had a seizure. He told me that I had fallen pretty hard, and man did I feel it the next couple of days.

  The next couple of weeks I was to scared to go anywhere by myself . This is when I decided to try and upgrade to a hard shell helmet. My reasoning was that this would be more durable, and it would make me feel more safe.

  I will begin to tell you that seizure helmets are not cheap. This particular helmet cost me about $470 thats including the shipping cost. Being someone who works in fast food, this was not easy to come up with the money. 

  On the news I saw  stories of how some people were able to get help using croudfunding services.
One particularly was GoFundMe, so thats what I did I set up a page and in about a month I was able to get my helmet.

  I am so thankful that a lot of my friends and family could help me raise the money for my helmet. Now my brain feels a lot safer because of it.

Using A Rollator Walker

Recently because of dizzy spells and  blackouts I have to use a Rollator Walker. I mostly use it when I go shopping, Church, and when I go for a walk. I love the fact that it has a seat, I can sit down on the seat and rest, that is why I asked for it. Because of my lightheadedness and dizzy spells I can't walk for far distances. Like I have said Leukodistrophy has started to take it's toll on my body. I have seen others with my disease in wheelchairs but that is something I want to aviod. I still want to be able to walk as long as possible.

Difficult things for me to deal with having a walker are getting in the refreshment line after Church. Also at my age of only 37 alot of people stare at me when I go to the store.
As things start to progress even though I get the looks and stares I'm still greatful that I can still get around even if it is with my walker.

      

High Cost of Epilepsy Treatment

  One thing I know from being an epileptic for so many years is that visits to doctors and specialists can be very costly, ever after insurance. Just for a MRI is about $500.00 after medical insurance pays. With epilepsy it seems like a never ending cycle. My VNS alone is about a $50,000.00 procedure, my insurance pays all but 2,000.00 and that doesn't include the turning on of the device and the adjustment appointments witch I have about every two weeks until my VNS is adjusted correctly. Since my surgery I have racked up an estimated $4,000.00 in medical expenses. On top of that my medication that I have to take. It is very hard for me to make it on a fixed income as an epileptic. I myself have tried to start working from home but to no success. I have and online T-Shirt Shop 
my sales have been slim to none.

    My wife works but I want to contribute to my families finances and do my part. I would go back to my old job but the amount of seizures I'm still having won't allow me to. 

One other thing that is quite costly is my medical supplies such as my adult diapers due to my incontinence. So you see there are a lot of expenses when it comes to epilepsy.



       

Safety in the shower

    One thing I would like to talk about today is safety while bathing. A lot of people don't think of this being a big deal, but as an epileptic it is. I have heard of people having a seizure in the tub and drowning. 

Here are some tips to keep you safe:

1. Take a shower instead of a bath.

2.Use a shower chair or seat in case of drop attack.

3. If you have to take a bath make sure to have someone with you in the bathroom, I case of a seizure.

4. Make sure to have safety bars or railings installed in your bath tub or shower, to prevent falls.

           

Health Product Review: Tranquility Slim Line Original Brief

I just got this product sample in the mail, and as soon ass I put it on it fit like a glove. This product provides total comfort, most products move around when walking but this brief stays right in place. So far when receiving Tranquility products in the mail I have not been disappointed. 


Features Include:
Extra inner gathering to prevent leaks.
Four adjustable tabs
Wetness indicator to let you know to change product.
Fluid Capacity 21.4 oz. 


 This product also works great with Adult Booster Liner 



Added this gives you an extra 27.5 oz.
That means you could probably wear the briefs for almost half of the day before you even have to change it and still feel dry. Depending on your level of incontinence  both of these are great products.


Well I hope this review was helpful.


Please be sure to G+, Share, Tweet, Pin, or Comment below