Thursday, November 8, 2018

Dealing with Seizure & Vocal Tic Disorder


Everyone who knows me has known about my struggle with Leukodystrophy and Seizures. But for the past three months, I have been dealing with vocal tics. Having both Vocal Tic Disorder plus Seizures have been a challenge for me to deal with. Sometime I will have tic attacks leading into a seizure, which can take a major toll on my body.  




When People Stare

  People have always looked and stared at me because of my seizure helmet, but now when I have my vocal tics even more people look and think there is something wrong with me. Some of them walk away like they are scared to be around me. 

Loud

  Sometimes my vocal tics can be really loud. At times they can be small and quiet as well. I wish I could keep them under control. I have had a total tic meltdown in the middle of Wal-Mart at one time.

Sleepy

After having tics all day most of the time it will leave me feeling tired and sleepy. Sometimes I will have high blood pressure after a major tic attack. The last time this happened I was forced to take five days off from work. 





Thursday, March 15, 2018

Adult Diaper Review: Rearz Rebel (ABDL)

Todays review is the Rebel diaper from Rearz Inc.
I just purchased this diaper from ebay and I must say that this one is very unique. This is the first diaper I have seen with a cool skull and bone pattern on it. I have also found other matching apparel that Rearz offers such as adult training pants and adult onesie with the same skull and bone pattern. 

Now about the diaper, it has a cool design on it. Just like all of Rearz products it has all of the same features of the rest of the diers they offer.
Lots of absorbant padding, great leaks guards, and thickness. I must say that I really love this diaper, I love the really cool print. I highley recoment this one to any Little in the age play community.

Wednesday, November 15, 2017

Causing my own seizures, banging my head against the wall.

   I do have Epilepsy, but sometimes I am so frustated with my life that I will go into a state of depression and hit myself in the head causing even more Seizures. I want to share this because there are so many people out there who deal with Epilepsy with Depression togrether. Even though I have a great support system, I still have times I have a sence of worthlessness. I think one of the things that make me feel this way is because even though I have different treament options such as VNS and medication, I feal slowed down and not being able to keep up with the world around me.

 This is the first time I have talked about this in my blog, simply because of what people might think or say. The only reason I am sharing this now is because I know that know that there are others out there who may have the same problem.

   Other ways that I have cause my own seisures include, dinking with medication, staring at the wall, and watching strobe videos on YouTube. 

  Well I hope my honesty has helped those reading. If you struggle with the same thing please comment and share bellow.

Wednesday, June 28, 2017

Wetting Myself

There many things that I  lose cotrol of during a seizure. One thing that happens to me a lot is I end up wetting myself, I do of course wear adult diapers to aviod embarrassment. I have had so many problems with seizures that I have become regularly incontinent, that means I wet myself even without having a seizure.

With my incontinence it hase become rather expensive. I use about 2 cases of 80 diapers a month. That is not includig wipes creams and pouders. The only time I save mony is when I find diapers at thrift stores.


Wearing in public can sometimes be a  problem. Carrying an extra bag for my diapers, or wearing a diaper in the airport. Most of the time it is hard to hide the fact that I am wearing, or wet. Changing a wet diaper is a big hassle in a public restroom. Most of the time I have to use the large handcap stall to have enough room to change.

It is really hard to tell the hospital that I wear a diaper. They see these types of things all the time, but it is still hard for me to tell them that I need a change, or that I'm wet. 

I do have a lot of challenges being incontinent on a daily basis. I just wanted to write and share my own personal experience

Thursday, March 9, 2017

Deaper Review: FAB SENSE CityPrint

Hello, today I want to ealk with you about a new adult diaper that recently got in the mail. It is the City Print Brief by Fab Sense. After wearing these I would have to say that these are very comfortable. The padding is very thick and absorbant. I can wear these at least 12 - 14 hour with no leaks.


Here are  some of the key features of this diaper.







  • Super Absorbent Cotton Core
  • Plastic Backed Surface
  • Refastenable Tapes for extended wear
  • Double Leg Cuff Design
  • Elastic Waistband
  • Colourful and fun city print
  • 3,000 ml absorbency
  • All Cases are shipped in plain discreet boxes
  • Sizes include Medium & Large


  • This is a very fun diaper to wear. The price is very reasonable, for the confort and quality.


    Monday, December 5, 2016

    Why Some Epileptics (ABDL) Age Play

       Some people don't why some of us like to age play. For a lot of people it's never for the same reason. Some ABDL's do it for stress relief, or some just miss that sense of reliving there childhood.
       
    There is another group of people I want to talk about to today, something I don't think people know exists. People like myself, a person with epilepsy. Someone reading this may say this is ridiculous, but it's not a crazy as you may think.
    I have many reasons that I age play, one of these reasons is my struggles with urinary incontinence.
    Because of this I have to wear adult diapers, but this is not something to easily accept. To help myself accept this I have started to age play with baby toys, adult baby clothing, and ABDL clothing. With this new change in my life I have been a calmer person, have had less seizures, and I have felt more confident in my need for adult diapers.
        There are sopme people who may be angry or upset with this article. Some who my say, I have epilepsy and I don't wear diapers and act like a baby. To those people I would like to say, all of us who deal with this are different. Also we all have different things going on with our health and how we choose to deal with our problems is different as well.

    Friday, December 2, 2016

    Epilepsy & Wearing Diapers

    One question that a lot of people ask. Is it normal for adults with epilepsy to wear diapers. The answer is that it is a matter of preference if the person with epileptic incontinance feels it is necessary for them to wear an adult diaper. Some people are OK with wearing them, while others are turned off by the idea.
         When I started having problems with incontinence it was a very hard transition because in my mind I thaught only babies and old people wear them. One day I had an acident after having a seizure in public, I wet myself and it was an embaressing moment in my life. All I knew is that I never wanted that to ever happen again. In my opinion, it is better to wear an adult diaper then it is to have an embaressing acident in public.

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