Organization and Sanitation Products for Incontinence

One thing that I have started doing with my incontinence products is finding a way to keep everything nice and organized. I dicided to go to Wal-Mart to try and find something for this, because all my adult diapers and other things were just stacked on my dresser. 

    I baught two Sterilite 3 drawer Carts to organize my things. I have a place for everything now. Since I have two I took the weels off of one cart and stacked them together to make it a 6 drawer cart. So in one draer I keep me disposable underpads, then the booster pads, disposable underwear, the next few drawers dispoable briefs, and at the top, gloves, wipes, and cream to protect against rash.

 One other thing I dicided to purchace  is two small trash cans with lids, to keep areas sanitary and free off jerms and bacteria.

Using A Rollator Walker

Recently because of dizzy spells and  blackouts I have to use a Rollator Walker. I mostly use it when I go shopping, Church, and when I go for a walk. I love the fact that it has a seat, I can sit down on the seat and rest, that is why I asked for it. Because of my lightheadedness and dizzy spells I can't walk for far distances. Like I have said Leukodistrophy has started to take it's toll on my body. I have seen others with my disease in wheelchairs but that is something I want to aviod. I still want to be able to walk as long as possible.

Difficult things for me to deal with having a walker are getting in the refreshment line after Church. Also at my age of only 37 alot of people stare at me when I go to the store.
As things start to progress even though I get the looks and stares I'm still greatful that I can still get around even if it is with my walker.

      

Shirts, Buttons, Mugs and More

My mission here is to continue to bring you more great content. I enjoy bringing you an insite into my life with Leukodystrophy. I have alot of readers as well as a lot of listeners on YouTube. I would like to continue this but I'm having to raise some funds to keep my internet bill paid. So I am selling some uniqu items on Cafe Press to help fund my outreach. I am selling T-Shirts, Mugs, Buttons, and other cool things. As you can see that all my items have a Christian theme to them, that is because I'm not just a person with epilepsy, I'm also a firm believer in the Lord Jesus Christ. So the proceeds from the sales will go twards keeping me online and also giving out of free Bibles if you would like a Bible please e-mail me brotherjohnspeaks@gmail.com Some of you may think that I may make a killing on all these items I sell but the truth is that I only make about $2.00 on each item after Cafe Press gives me my comission. I have to earn $25.00 before they will release funds to my PayPal account. I have picked out items to sell in my store that are for any buget so feel free to browse around and find an item that is right for you. Click Here to Shop

                    

Product Review: Plastic Pants for Incontinence Brief

The product I am reviewing is in the subjuct of incontinence. If you ever had to wear adult diapers you would know that after a while they tend to slide down or slide off. Well I have recently found that wearing a plastic cover up will help you from this problem. They are somewhat expensive if you don't know where to look online. My first couple of pairs I got on ebay for about $7.50 for 2 pairs.
On other sites they cost anywhere from $20.00 to $45.00 depending on your size, so you best bet is to go to Ebay or other auction sites.

All in all I find that using the plastic pants cover ups helps keep the diapers from sliding down and also protects against leaks at night. There is no set brand that I have chosen for this product just whatever  fits and is on sale. But overall I would have to say that plastic pant cover ups work great, and would highly recomend to anyone who has incontinence problems.

   

Progression of My Leukodystrophy

Since the day of my surgery I have seen things get better for a while, then get worse. A kind of back and forth kind of progression. I have Leukodystrophy, and it's kind of a progessive disease that gets worse with age. Leukodystrophy is a diterieration of the Myelin Sheath or (white matter) in the brain. Myelin is the protective coat over the nerves in the brain, kind of like the plastic protection on an electrical cord. 

People with this disorder experience

• Balance / equilibriun problems
• Shaking (ataxia)
• Seizures
• Problems with motor abilities (walking running)
• Probems with itellectual abilities (comprehension, memory, behavior)
• Sensory problems (seeing hearing etc.)

With my VNS (Vagus Nerve Stimulator) I don't believe that this is a cure for my Leukodystrophy.

I have read from other people that they have had there loved ones have VNS to help control the seizures.

This does not stop the fact that the Myelin Sheath (white matter) in the brain is still in deterieration. So it is not my opinion that VNS will stop or control any of the other simptoms listed above. The reason for this is because I have begone to experience some of the other simptoms of this disease and it will only get worse as I get older.

    

Having A Seizure In Public

Having  seizures in a public place can be embarassing  as I have found out just a few days ago. I was shopping with my wife when all of the sudden I had a small seizure in the checkout line at a thrift store. I am so glad that I was not alone that day simply because there is not a lot of people who know what to do in these situations. To all those who have epilepsy, I would say that if you have severe seizure activity, don't go anywhere alone. I myself already stay home alone everyday and still I don't feel safe. So I know not to go anywhere alone.